Lauri Jean Crowe

Artist, Writer, Woman, Mother, Healer, Teacher, Biohacker, Gardener, Friend, Entrepreneur

Thank You For Not Letting Me Fade Away

Thank You For Not Letting Me Fade Away URL

Today’s visit with my PCP/Rheum was depressing. Thanks to a talk with a good friend I am reset back to positive today. This month is about a holding pattern and rest. My spirit remains strong despite all the challenges I am facing physically and financially and I have a great support network of friends and family cheering me on through it. You matter in more ways than I could ever express.

Thanks to all of you who have sent me messages and mail pick me ups. They really help. This has been a very rough year and a half for me and I appreciate that you still have the energy for me when on some days I only have the energy for healing. When I look objectively at my last 3 months of progress I know I am doing FANTASTIC in the bigger picture. I’m a freaking rock star!

I went hypothyroid for the first time in months since regrowing my thyroid tissue and am back up on meds for that. I got a virus in early Feb that turned me into a cocooning hermit again, and the virus turned into parotid infection and has to be treated aggressively. This once again has left me unemployed. Once the parotitis is fully treated I’ll be starting Imuran, an immunosuppressant that got me off of prednisone in the past and was able to be a short term (6 months to a year) solution.

There is a balance of baclofen/prednisone that I can’t currently wean below without having falls, facial numbness, visual issues, muscle spasms and flares of my Lupus, Sjogren’s, Hashimoto’s and Fibromyalgia. The bad news is that the extended prednisone has made my blood pressure skyrocket and affected metabolism and digestion. These “side effects” are being managed but life would be much better and more productive without the additional challenges. It’s a precarious balance. I stand in tree pose against a wall a lot.

The good news is that on that balance of meds those core issues disappear as long as I take FIT (with blessing of neuro, cardio, rheumatology and endocrinology). Even the grueling daily fatigue and brain fog lifts enough for me to function like a human instead of feeling like a total failure at living. FIT has been a huge blessing in my life.

I still have no headaches after almost 90 days which has improved my world dramatically. I am sleeping much better. There are many positives – I have a protocol that is working to keep me safe from falls and able to see. I have gotten off SIX around the clock prescription meds successfully so far since I started FIT. I’ve reduced use of THREE others.

I am finding yoga to be a way to keep getting stronger. On days in the past when I would have stayed in bed I am able to get up and do things around the house, do my exercises, be with my family and even art and write a bit. I’m not back to 100% but I know I am doing everything in my power to get there. Slow is frustrating and it is hard to keep embracing Turtle Energy when I want to soar.

This is a hiccup just like the other involuntary contractions happening in my life. It will be short lived and I’ll get through it. Thanks again for your well wishes and ongoing support as I do so. Those positive vibes, good juju and prayers do help. The “little things” count in big ways when you are dealing with debilitating, chronic illness. I appreciate each and every one of you who has taken the time to show me you care – you know who you are.

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This entry was posted on March 1, 2016 by in Uncategorized.

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